So this first new drug. I believe I mentioned before that Dr. M was planning to put me on this drug after chemo in any case, and I’m unsure whether that’s comforting or not XD But I’ve been taking it since the evening of my latest surgery (did I mention I had another surgery? just to have my IP port removed; quick and easy), when the surgeon (Dr. D) said it should be safe to start. It needs to be taken approximately every twelve hours, so I’ve aligned it with my animal breakfast/dinner times. Alexa reminds me that I need to take it at each of these times, and so far I haven’t forgotten even once. Another benefit of this is that my animals beg for their meals less. Now they know that when Alexa says, “This is your reminder: take your pills,” it’s time for breakfast or dinner.
I’m also on some supplemental drug (I’ve kinda stopped memorizing their names) that’s a quick infusion at the cancer center every three weeks. I’ve had it one time, and it didn’t seem to cause or worsen any side effects.
But the oral drug. Yeesh. It’s got a few side effects I don’t mind, but get this: it strongly exacerbates my existing arthritis, to the point where I can’t do anything with my hands/wrists, and the pain makes it hard to sleep. This manifested pretty early on, and after a while, when it wasn’t going away, I called the cancer center to report it. Dr. M had me do half doses for a week, and that cleared it up pretty well. When I went back to full doses after that week, that very night, the arthritis started to flare up again. Once more I waited a few days to see if it would calm down, then called the cancer center again. That was two days ago. This time Dr. M told me to go off the drug entirely until he could get back to me this morning; waiting on that phone call. The flare-up went away almost immediately after ceasing to take the drug.
This is distressing. Of course the pain sucks, but what really sucks is the inability to do the things that bring me fulfillment. No typing, no drawing, no video games, no access to my emotional support group (i.e. Discord XD). Once again I’ve spent a lot of time just watchin’ episodes. And, you know, if it’s a choice between doing things I love and dying, that’s pretty easy. But I sincerely hope something can be done about it so I won’t have to live without life for the foreseeable future.
If I haven’t been around much lately, and it seems like I haven’t been working on things, now you know why. If you’re waiting on a picture from me, I promise I’ll get to it as soon as I can. Here’s hoping it’ll be sooner rather than later.